By: Dr Alex Robber
Dear Wretched Human Being, Hello, my name is Fibromyalgia and I’m a chronic invisible illness. I am now life-long’ velcroed’ to you. Others around you can’t see me or hear me, but I am sensing Your body. Anywhere I can attack you and anyway I can. I may cause severe pain, or if I’m in good mood, all I can do is make you feel sore all over.
Remember when you and Power were playing around and having fun together? I took you strength and gave you exhaustion. Start just having fun now! I took Good Sleep from you too and gave you Fibro Fog (a.k.a.) Brain Fog in his house. I can make you shiver inside or make you feel cold or hot when everyone else is feeling natural.
Oh yeah, I can make you feel depressed or anxious too. If you’ve arranged something, or are looking forward to a great day, I can take that away too. You didn’t ask me about it. For a variety of reasons, I chose you: the illness you never recovered from, or that car accident, or conception, the death of a loved one, or perhaps those years of abuse and trauma.
Well I’m here to work anyway! I hear you see a doctor, who can get rid of me. I am ROFL (rolling laughing on the floor)! Please give it a try! You’ll need to go to many, many doctors before you find one that can effectively help you out. You’ll probably see many doctors telling you,’ it’s all in your brain’ (or some variation of it).
You will be placed on pain pills, sleeping pills, and energy pills if you find a doctor willing to treat this’ non-disease.’ You’ll be told you suffer from anxiety or depression, provided a TENS unit, I’ll go away if you just sleep and exercise properly. You will be told to think positively, poked, prodded, and most of all, when you complain to the doctor how painful life is to you every single day, you won’t be taken seriously!
The relatives, friends, and coworkers will all listen to you until they’re all tired of hearing about how I make you feel, and I’m a debilitating illness. Some of them are going to say things like “Yeah, you’re just having a bad day,” or “Ok, remember, you can’t expect to do the things you used to do twenty years ago,” not hearing you say “20 days ago!” Some will just start talking behind your back, while you’re gradually thinking you’re losing your dignity, trying to make them understand, particularly when you’re in the middle of an ‘average’ person conversation, and can’t remember what you’re going to say next!
In closing, you’ve probably figured out that the ONLY place you’ll get any genuine support and understanding with Other People with Fibromyalgia in dealing with me! We are the only ones who understand your complaints of unrelenting pain, insomnia, fibro fog, the failure to perform the daily tasks that are taken for granted by’ normal people’