By: Dr Alex Robber
Fibromyalgia affects more than 5 million people and this figure is increasingly increasing. This is sometimes considered an invisible disease, since people cannot see the way the illness affects people. Fibromyalgia is typically a quite serious condition that should be recognized with the patients understanding and their symptoms. So Fibromyalgia Resources (FR) compiled a study on fibromyalgia and discussed various fibromyalgia-related matters that everyone should be aware of.
What is Fibromyalgia?
The name of fibromyalgia derives from fibro (the Latin term for fibrous tissue), myo (the Greek word for muscle), and algia (the Greek word for pain). An approximate 3 to 6 per cent of the world’s population suffers from the disease, according to the National Fibromyalgia Association: about 450 million people, including at least 10 million in the United States.
Fibromyalgia is a condition that is confounding and widely misunderstood, characterized by generalized discomfort and tenderness followed by fatigue, sleep, memory and gastrointestinal problems. Because there is such a vast variety of possible symptoms (and there is no clear consensus on how to treat the disorder), many feel confused as to what affects them and what to do about it.
The most important thing to remember is that there may be a poor understanding of fibromyalgia, but it is very possible. By becoming more conscious of the disorder’s signs and symptoms, you will help your doctor recognize fibromyalgia and access treatment that could greatly improve your quality of life.
Fibromyalgia Care Society of America
The Fibromyalgia Care Society of America (FCSA), established in 2015, is committed to revolutionizing how fibromyalgia is treated in this country through the implementation of a systematic holistic approach to care, family support and support groups.
Mildred Velez, who has been dealing with fibromyalgia since 2007, created the organization in response to the lack of direct resources for those living with fibromyalgia and the dearth of dedicated medical care and assistance. Mildred has developed a descriptive and direct approach, along with a committed board of trustees, to support those dealing with fibromyalgia, and their families. The FCSA is committed to the highest standard of care and programs that also promote equality in care, so that everyone living with fibromyalgia can take advantage of care regardless of their socioeconomic status and geographical location.
The FCSA is committed to a holistic and cutting-edge support model that will be implemented across three key areas: Centers of Excellence, Fibro Cares and Groups of Empowerment.
The Fibromyalgia Care Society of America (FCSA)’s mission is to provide educational, care and support services to individuals living with fibromyalgia, their families and the local community. In addition, FCSA must seek to educate medical professionals about the proper diagnosis, care and treatment of those living with the condition.
Fibromyalgia Center of Excellence
The concept of the Center of Excellence is not new for the treatment of diseases from cancer to cystic fibrosis. The solution is simple: partnering with leading medical colleges and teaching hospitals across the country to provide multidisciplinary care for the elite. As such, the FCSA is currently working with several of the country’s leading hospitals to develop standards of care model that will be used to care for those living with fibromyalgia.
The FCSA will begin its Center of Excellence Initiative with a dedicated facility that will provide individuals across the country with preparation and organized treatment. In subsequent years this facility will be the model repeated around the country. You should expect to find a team of medical and care professionals in an FCSA Center of Excellence who have the most up-to-date information on fibromyalgia care.
Nutritionists will be part of the care team; holistic care management, physical therapy, mental health support and additional services. Most significantly, people who are underinsured or do not have benefits will be able to receive care and support regardless of their financial ability.
At these world-class hospitals, patients benefit from experienced neurologists, mental health clinicians, therapists, psychologists and other experts who have deep experience working with fibromyalgia-affected families and who work in partnership to help families prepare the best fibromyalgia treatment programmed.
FCSA has confirmed that it is launching an Excellent System Fibromyalgia Center (COE) for people with fibromyalgia. They collected the necessary funding to identify and help fund the first COE targeting fibromyalgia treatment. It will seek letters of interest in early January. We are hoping the system will be available until mid-2019. The President and founder of the FSCA Board, Mildred Velez, said that medical centers and the doctors who treat fibromyalgia are encouraged to act.
“We think we should start something here that will help the general medical community recognize and treat every patient with their own care plan,” Velez said to the National Pain Survey.
“Fibromyalgia receives a lot of stigma from the medical community and the culture as a whole, and lack of empathy,” she said. “Conditions and disorders such as cancer, Alzheimer’s, Parkinson’s all have facilities and medical approaches that are devoted to research, organized health care and treatment. So far, no systematic efforts have been made to do this for fibromyalgia.’
- “I was very lucky to get my diagnosis to develop symptoms very early because my mother has fibromyalgia,” said US Marine Francisco Martinez. “Millions out there aren’t so lucky.”
- The Center will offer coordinated care and professional resources for medical providers.
- The Center will offer multidisciplinary care, diagnostic and treatment at one location-pretty much a one stop shops for fibromyalgia care.
- The Center will offer equality in care to ensure that everyone living with fibromyalgia is able to manage this condition and live their best lives regardless of their socioeconomic.
- The Center program will serve as the pilot model for the rest of the country by developing standards of care and best practices for fibromyalgia treatment.
- Finally, The Center will be overseen by people living with fibromyalgia (FCSA).
What does Fibromyalgia feel like?
Fibromyalgia is a pain that never goes away and makes you feel like crying. Living with fibromyalgia is like never feeling pain in any part of the body or your entire body is being bruised. Almost like you slept on a hard floor and someone kicked you all over. Every day I feel like I’m sick with another ailment.
How to test yourself for fibromyalgia
Symptoms of fibromyalgia include severe body pain, tiredness, poor sleep and mood problems. But several other disorders are similar to all these symptoms. And because symptoms of fibromyalgia may occur alone or in combination with other conditions, it may take time to figure out which symptom is triggered by what problem.
Fibromyalgia symptoms will come and go over time, to make things even more complicated. But it can take a long time to go from signs of fibromyalgia to a diagnosis of fibromyalgia. Only a doctor can diagnose fibromyalgia correctly but there are some steps you can take to determine your own risk of fibromyalgia.
How do you treat fibromyalgia?
A variety of medications and alternative treatments are available to help relieve pain and other symptoms of fibromyalgia, but so far there is no remedy for fibromyalgia. You can try and ease your pain with this option. Few of them are like AVACEN, balneotherapy, herbal therapy is also available for fibromyalgia and is very effective.
- Fibromyalgia Center of Excellence May Open in 2019 By Ed Coghlan via National Pain Report
- FCSA Centers of excellence via Fibro.Org
- Fibromyalgia Care Society of America, Inc. via Facebook