Fibromyalgia: Surviving an Invisible Misery – FR Report

Fibromyalgia: Surviving an Invisible Misery – FR Report

By: Dr Alex Robber

More than 5 million people in the U.S. are affected by fibromyalgia, and the figures are also continuing to increase. Fibromyalgia has many painful symptoms. It is known as an invisible illness, so people cannot see the way the disease hurts people. Fibromyalgia is typically a quite serious condition that should be diagnosed with the victims understanding and their symptoms. So, Fibromyalgia Resources (FR) compiled a study on fibromyalgia and discussed various fibromyalgia-related matters that everyone should be aware of.

What is Fibromyalgia?

The name of fibromyalgia derives from fibro (the Latin term for fibrous tissue), myo (the Greek word for muscle), and algia (the Greek word for pain). An approximate 3 to 6 per cent of the world’s population suffers from the disease, according to the National Fibromyalgia Association: about 450 million people, including at least 10 million in the United States.

Fibromyalgia is a complex and widely misunderstood condition with recurrent pain and tenderness accompanied by fatigue, sleep, memory problems and gastrointestinal concerns. Because there is such a vast variety of possible symptoms (and there is no clear consensus on how to treat the disorder), many feel confused as to what causes them and what to do about it.

The most important thing to remember is that there may be a poor understanding of fibromyalgia, but it is very true. By becoming more conscious of the disorder’s signs and symptoms, you will help your doctor recognize fibromyalgia and access treatment that could greatly improve your quality of life.

Symptoms of fibromyalgia

Fibromyalgia symptoms are categorized into 15 categories.

  • 1. General
  • 2. Pain
  • 3. Neurological
  • 4. Equilibrium/Perception
  • 5. Sleep
  • 6. Eyes/Vision
  • 7. Cognitive
  • 8. Emotional
  • 9. Gastrointestinal
  • 10. Urogenital
  • 11. Skin
  • 12. Sensitivities
  • 13. Cardiovascular (Heart)
  • 14. Hair/Nails
  • 15. Others

What does fibromyalgia feel like?

Fibromyalgia is a pain that never goes away and makes you feel like crying. Living with fibromyalgia is like never having pain in some part of your body or your whole body is being bruised. Almost like you slept on a hard floor and someone kicked you all over. Every day I feel like I’m sick with another ailment.

Fibromyalgia is a perfect day to day reason to live. If you are waking up and able to move, make the most of it. If you wake up and are unable to move, then don’t. Get some rest, read a book and watch a film. Maybe it’s not what you want, but that’s what you have to do for the day. It’s a new day tomorrow and may well be different from yesterday. Thank you for having you tomorrow, because many people are not. I know when you’re in constant agony, it’s hard to feel that way, but there’s always something positive to do every day.

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No words to describe how bad it is, it’s a living hell, it makes you feel like I don’t have any more time.

Causes of Fibromyalgia

There are several causes of fibromyalgia which have been identified by the numerous studies carried out. Such causes vary from having a major illness in their lives at some point, to the injuries that have occurred. More recently, however, studies show that emotional trauma may lead to fibromyalgia developing. In fact, the PTSD or post-traumatic stress disorder is related to those who experience this condition.

There is much literature on the causes of fibromyalgia, one of which states that fibromyalgia is related to emotional abuse and childhood trauma. Gaga, also claims the cause of her fibromyalgia was triggered when she was 19 when she was sexually assaulted. Adding to this physical and emotional burden of celebrity and touring exacerbated her medical condition, said her health is on an upswing right now. “Every day, it’s getting better, because now I have great doctors who are taking care of me and getting me ready to show,” she said.

There are many hypotheses about the causes of fibromyalgia on the internet. All the ideas have some reasoning behind them and to a lot of audience it seems valid. And here we’ve compiled the list of a few more appropriate explanations of fibromyalgia causes. We leave it to you; you determine which one you think is more true to. In this article we discussed findings on the theory of blood vessels, the theory of central nervous system disease, dysfunctional theory of spinal cord, and research studies related to trauma. Please give them a read and let us know in your comment which one you think is the most likely cause of your fibromyalgia

Few of the causes of fibromyalgia are listed below:

  • Central Nervous System Theory
  • Chronic Osteomyelitis
  • Infectious Mononucleosis
  • Growing Pains
  • Endocannabinoid Deficiency 
  • Abuse
  • Occipital Neuralgia
  • Childhood Trauma
  • Spinal Cord Dysfunction
  • Blood Vessels Theory
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How do you treat fibromyalgia?

A variety of drugs and alternative treatments are available to help relieve pain and other symptoms of fibromyalgia, but so far there is no remedy for fibromyalgia. You can try and ease your pain with this option. Few of them are like AVACEN, balneotherapy, herbal therapy is also available for fibromyalgia and is very effective.

What You Should Know About a Person with Fibromyalgia

1. My pain 

My pain is no inconvenience to you. It is not inflammation that causes this. Taking medication for your arthritis won’t help me. I can’t quench my discomfort or shake it off. It’s not even a stay putting hurt. It’s in my hand now but may be in my foot or gone tomorrow. My pain is thought to be due to incorrect signals sent to the brain, possibly due to sleep disturbances. It’s not understood well but it’s true.

2. My fatigue 

I am not only fatigued. I still find myself in a severe state of fatigue. I might want to take part in physical activity, but I can’t. Don’t take this personally please. If you saw me shopping yesterday in the mall but I can’t help you with today’s yard work, it’s not because I don’t want to. I pay the price, most likely, for stressing my muscles beyond their strength.

3. My forgetfulness 

That is what those of us who suffer from it call fibro fog. I probably don’t remember your name, but I remember you. I may not know what I promised you to do, even if you told me just a few seconds ago. My problem has nothing to do with my age but may have something to do with sleep deprivation. I have no selective memory. I just don’t have any short-term memory on some days at all.

4. My clumsiness 

When I trip on your toes or run into you in a crowd five times, I’m not trying to hit you. I don’t have hold of the muscle for that. If you’re on the stairs behind me, please be patient. These days I’m taking one step at a time in life and stairwells.

READ ALSO:  Somewhere Between Denial and Depression in Fibromyalgia

5. My sensitivities –

I can’t stand it, really! “It” could be a host of things: bright sunlight, noisy or high-pitched noises, odors. FMS was dubbed the “aggravating everything disease,” so don’t let me open the drapes or listen to your child crying. I just can’t stand it.

6. My intolerance 

Nor can I stand fire. And moisture. I sweat… profusely if I am a guy. I suddenly transpire if I am a lady. Both are equally embarrassing, so please feel reluctant to point out this shortcoming to me. I know. And don’t be shocked if, when it is cold, I shake uncontrollably. I’m not tolerating rain, either. My internal thermostat is broken, and no one knows how to fix that.

7. My depression 

Yeah, there are days when I’d rather live or die in bed, or in the bathroom. Depression can cause severe, unrelenting pain. Your genuine concern and understanding could pull me off the brink. I can be tip over the edge by your snide remarks.

8. My stress 

My body’s not coping well with pain. I am not lazy if I have to give up my career, work part time or manage my duties from home. Everyday stress makes my symptoms worse and can leave me utterly incapacitated.

9. My weight 

I may be fat, or thin. It’s not by invitation, anyway. Your body is not my body. My appestat is broken, and no one can tell me how to fix it.

10. My good days 

If you see me smiling normally and running, don’t assume I’m fine. Without treatment, I suffer from a chronic pain and fatigue. I will have my good days, weeks, months or even. The good days really are what keeps me alive.

11. My uniqueness 

Even the ones suffering from FMS are not the same. Which means I may not have all the above-mentioned problems. I have pressure above and below the waist and on both sides of my long-lasting body. I may have migraines or hip pain or knee pain or pain in my back, but I don’t have exactly the same pain as anyone else.

12. My Disability

The impairment is invisible but there’s always one. It’s the same when you don’t see the sun, so it’s the same with fibromyalgia. It’s not just about our brains, so that’s why I wouldn’t bring about my brain anything that’s something like cancer, etc. Lets put this disorder Fibromyalgia sticker on your cars and spread fibro awareness

References:

  • History of early abuse as a predictor of treatment response in patients with fibromyalgia: a post-hoc analysis of a 12-week, randomized, double-blind, placebo-controlled trial of paroxetine controlled release. via NCBI, PubMed
  • Sexual and physical abuse in women with fibromyalgia syndrome. via NCBI, PubMed.
  • The prevalence of sexual abuse in women with fibromyalgia via Wiley Online Library. Ref 

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